Yesterday we had another growth and anatomy scan at Maternal Fetal Medicine. Our little girl is already 2 pounds 1 once! Her heart is looking good at this point, which leads us to believe that at her echocardiogram in a couple of weeks any heart abnormality that may be found will be a rather minor one.
We did, however, learn that her kidneys are enlarged. The doctor asked if Dave had any kidney cysts. He does. The doctor said that while it is too early to see for certain, he is thinking there may be cysts in our daughter's kidneys. This is a serious complication, but we do not know yet how serious this may be. The doctor asked where we were planning to deliver. We told him Holland and while he did not come right out and tell us "no," he did mention the following:
1. We needed to find a pediatrician right away-- and one that will be able to care for both her kidneys and VHL.
2. Only after talking with the pediatrician and learning what kind of care our daughter will need immediately after birth, whether inpatient or outpatient, will my doctor be able to say whether a delivery in Holland would be okay or if we need to be at Spectrum.
3. Futher scans and monitoring are needed.
I will be a patient at Maternal Fetal Medicine for the duration of this pregnancy and most likely for any future pregnancy. At the echocardiogram they will do another scan of her kidneys. After this we will be returning every couple of weeks for further kidney scans. Hopefully these scans will reveal with greater clarity what exactly is happening with our daughter's organs. And, finally, and maybe the currently most distressing news for me is that our daughter will need immediate postnatal care. We only hope that her kidney problem will be minor enough so that she can be an outpatient and we can enjoy life as a family of three (humans, that is!) without the stress of having our infant in neonatal.
And so, your continued prayers, support, kind words, and warm thoughts are greatly appreciated and very much needed. Thank you. We have hope that the coming weeks will reveal a situation not nearly as serious as what the doctors may be currently expecting. We have hope that our baby girl will be born healthy and will come home at the same time with mom.
We can't wait to meet her and to have all of you meet her as well.
Monday/Tuesday: conversations - Yesterday... Amanda: Joshua, do you feel ok? Joshua: my problem is Dad. A: that Dad isn't here? J: yeah. Today... A: Joshua, what did you do at school toda...
7 hours ago